Author Ben Mattlin has written a profound article on the value of life with a disability, partly in response to the suicide of Jerika Bolen, a 14-year-old Wisconsin girl who ended her life by refusing medical treatment. Mattlin has Spinal Muscular Atrophy–the same disability Bolen had.
“I dare not judge Jerika Bolen. I don’t know the entirety of her situation. But I do wish she had found the will to live. I’m saddened — as were many others with S.M.A, and some disability rights groups — to think others might grow so weary or apprehensive that they follow her example. I hope she received the same level of intervention any other suicidal 14-year-old would. I wish I could have told her about the psychological alchemy that can turn frustration into an internal fuel. If I’d had the chance I would have told her that society needs its disabled people, too.”
Read the full article here.
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